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The life-changing experience of being a living organ donor, or even just considering doing so, is a journey. It begins with that first spark of the idea, proceeds through a major education, numerous medical tests, and a lot of thinking about “what ifs”. It meanders through doubts, fears, excitement, worry, and from there it moves on to the “no” or the “yes” all of the feelings and events that come with that response. And for those who become donors, the journey passes through the actual surgery and recovery, and everything that goes into dealing with what comes next.
It is a singular, immensely personal experience. A rare one, relatively speaking, in our society. A mind-bending trip through unknown territory.
On such a journey, a good guidebook could come in handy.
As a past living donor, and founder/president of the now-defunct Greatest Gift Foundation, which provided knowledge and support to living donors, I am working on writing that guide book.
“The Living Donor Handbook: Personal Stories and Practical Advice to Guide you on your Life-giving Journey”
This work will rely heavily on first-hand stories of living donors, living donor transplant recipients, living donor transplant coordinators, transplant surgeons, and others with personal experience to share.
If you or someone you know would be willing to participate by sharing your experience, please get in touch with me! I intend to interview no fewer than 200 living donors for this book; all experiences and stories are welcome. (While I will hope to interview people on the record, and use their names when possible, I pledge confidentiality on every initial conversation and can accept interview subjects whose names would be changed to protect anonymity.)
To reach out, contact me here.